Rare disease is a misnomer

1 in 10 of us will develop a rare disease within our life span.

MORC2-Related Disorder (also called M2RD or CMT2Z) is a rare and devastating genetic disorder for which there is currently no cure. At MORCure, we are dedicated to empowering patients and accelerating treatments.

  • What is MORC2?

    MORC2-Related Disorder is a rare neurogenetic disorder which was only discovered within the last decade.

    Find out more >

  • Newly diagnosed?

    You are not alone. MORCure is here to empower patients and families with facts, a network of medical experts and create a path to treatment innovation.

    More information >

  • Participate in Research

    MORCure networks with scientists and medical professionals across the globe to advance research and improve lives for M2RD patients.

    Take part in Research >

WHAT WE DO

Amber is living with MORC2-Related Disorder (also called M2RD or CMT2Z), a rare and devastating neurogenetic condition for which there is currently no cure.

Although M2RD is a rare condition, innovation and research advancements which help us better understand M2RD and its gene, MORC2, have broad benefits for humanity as a whole. This is because the MORC2 gene is active in all of us and we now know that when it does not function normally, the change in function may be driving other common diseases, like cancer. Advancing science for Amber and all M2RD patients, advances science for children and adults everywhere.

MORCure’s sole purpose is to accelerate a cure for children living with M2RD by advancing science that improves the management, treatment and lives of M2RD children. MORCure is the first and only global charity leading research innovation and best practice in care for children with M2RD.

We are scientists, healthcare professionals, doctors, industry partners, and caregivers who are committed to changing the paradigm for children diagnosed with M2RD across the globe.

Join us in our quest to pioneer medical breakthroughs that will transform the lives of the children we serve and push the boundaries of genetic medicine for all.