Calling for patients, parents and caregivers with direct experience of MORC2-related disorder (CMT2Z) experience to help guide the 2030 MORCure Strategy.

We will be holding a patient and caregiver working group to help craft our strategy and ensure that our goals are aligned with patients and caregivers living with MORC2-Related Disorder (M2RD or CMT2Z).

Patients and caregivers over the age of 18 connected to a GENETICALLY CONFIRMED diagnosis of M2RD/CMT2Z will be invited to an international, 2 hour online working group session with several representatives from our MORCure team on Friday November 7th at 10 am PST, 1pm EST, 18:00 BST, 19:00 CEDT. Unfortunately, we cannot reimburse participants for their time. Taking part in this group will not lead to any direct benefit for patients or caregivers. Due to group size limitations, not all applicants will be invited to participate. Please be aware that this working group is unable to discuss specific individualised medical concerns. The purpose of this group is to devise broad aims of the charity that are best suited to meet the needs of the diverse patient and caregiver population we aim to serve.

Please confirm your interest on or before 6th October by filling out the form below.

I would like to volunteer on the MORCure patient/caregiver working group on:

Friday 7th November

To provide inputs to the 2030 MORCure Strategy and ensure it represents the views of the individuals for whom it is intended to support.

I am able to join this online working group in my timezone
(10am PST, 11am MST, 12pm CST, 1 pm EST, 18:00 BST, 19:00 CEDT)
using my personal electronic device.